Building a New Future: Our Family’s Floor Plans to a New Accessible Home | Cure Rare DiseaseWhen the boys were diagnosed with DMD we understood that we needed to find a new home as ours had 4 floors and too many steps. Steps are…Aug 9, 2021Aug 9, 2021
Choosing Gene Therapy: Reflections on Dosing, Before, During and After | Cure Rare Disease: An…Read the original post here.Aug 9, 2021Aug 9, 2021
Taking the Leap of Faith: Tips for before and after a muscle biopsy | Cure Rare DiseaseWritten by Jessica Curran; Read the original post here.Aug 9, 2021Aug 9, 2021
Published inStreamlabs BlogThis Summer, stream to help save the lives of kids battling rare diseasesCure Rare Disease is partnering with creators across the country to raise money for life-saving medicines for kids with rare, fatal…Jul 9, 2021Jul 9, 2021
Overcoming Obstacles: Building a Successful Career in an Inaccessible World | Cure Rare DiseaseWritten By Justin Cohen; Read the original post here.May 9, 2021May 9, 2021
Finding Career Motivation in a Rare Disease Diagnosis | Cure Rare DiseaseWritten by Katie Kuhl; Read the original post here.May 9, 2021May 9, 2021
30 With DMD: Finding My Life’s PurposeWritten by Vivek Gohil; Read the original blog post here.Jan 18, 2021Jan 18, 2021
Navigating Entrepreneurship and Motherhood While Battling SMAMeet Megan DeJarnett: a children’s book author, the CEO and founder of No Such Thing Co., and a mother of two. On January 7th, she…Jan 12, 2021Jan 12, 2021