Cure Rare Disease – Medium

Cure Rare Disease

Cure Rare Disease

Building a New Future: Our Family’s Floor Plans to a New Accessible Home | Cure Rare Disease

When the boys were diagnosed with DMD we understood that we needed to find a new home as ours had 4 floors and too many steps. Steps are…

4 min readAug 9, 2021

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Building a New Future: Our Family’s Floor Plans to a New Accessible Home | Cure Rare Disease

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Cure Rare Disease

Choosing Gene Therapy: Reflections on Dosing, Before, During and After | Cure Rare Disease: An…

Read the original post here.

4 min readAug 9, 2021

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Choosing Gene Therapy: Reflections on Dosing, Before, During and After | Cure Rare Disease: An…

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Cure Rare Disease

Taking the Leap of Faith: Tips for before and after a muscle biopsy | Cure Rare Disease

Written by Jessica Curran; Read the original post here.

7 min readAug 9, 2021

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Taking the Leap of Faith: Tips for before and after a muscle biopsy | Cure Rare Disease

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Cure Rare Disease
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Streamlabs Blog

This Summer, stream to help save the lives of kids battling rare diseases

Cure Rare Disease is partnering with creators across the country to raise money for life-saving medicines for kids with rare, fatal…

4 min readJul 9, 2021

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This Summer, stream to help save the lives of kids battling rare diseases

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Cure Rare Disease

My Child in Disguise | Cure Rare Disease

Read the original post here.

4 min readMay 9, 2021

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My Child in Disguise | Cure Rare Disease

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Cure Rare Disease

Overcoming Obstacles: Building a Successful Career in an Inaccessible World | Cure Rare Disease

Written By Justin Cohen; Read the original post here.

4 min readMay 9, 2021

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Overcoming Obstacles: Building a Successful Career in an Inaccessible World | Cure Rare Disease

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Cure Rare Disease

Finding Career Motivation in a Rare Disease Diagnosis | Cure Rare Disease

Written by Katie Kuhl; Read the original post here.

3 min readMay 9, 2021

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Finding Career Motivation in a Rare Disease Diagnosis | Cure Rare Disease

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Cure Rare Disease

30 With DMD: Finding My Life’s Purpose

Written by Vivek Gohil; Read the original blog post here.

5 min readJan 18, 2021

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30 With DMD: Finding My Life’s Purpose

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Cure Rare Disease

Our Proudest Press: 2020

Read the original blog post here.

3 min readJan 14, 2021

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Our Proudest Press: 2020

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Cure Rare Disease

Navigating Entrepreneurship and Motherhood While Battling SMA

Meet Megan DeJarnett: a children’s book author, the CEO and founder of No Such Thing Co., and a mother of two. On January 7th, she…

3 min readJan 12, 2021

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Navigating Entrepreneurship and Motherhood While Battling SMA

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Cure Rare Disease

Cure Rare Disease

Cure Rare Disease™ develops customized therapeutics for those with rare, genetic diseases that have no treatment or cures. Visit us at cureraredisease.org

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