Cure Rare DiseaseBuilding a New Future: Our Family’s Floor Plans to a New Accessible Home | Cure Rare DiseaseWhen the boys were diagnosed with DMD we understood that we needed to find a new home as ours had 4 floors and too many steps. Steps are…4 min read·Aug 9, 2021----
Cure Rare DiseaseChoosing Gene Therapy: Reflections on Dosing, Before, During and After | Cure Rare Disease: An…Read the original post here.4 min read·Aug 9, 2021----
Cure Rare DiseaseTaking the Leap of Faith: Tips for before and after a muscle biopsy | Cure Rare DiseaseWritten by Jessica Curran; Read the original post here.7 min read·Aug 9, 2021----
Cure Rare DiseaseinStreamlabs BlogThis Summer, stream to help save the lives of kids battling rare diseasesCure Rare Disease is partnering with creators across the country to raise money for life-saving medicines for kids with rare, fatal…4 min read·Jul 9, 2021----
Cure Rare DiseaseMy Child in Disguise | Cure Rare DiseaseRead the original post here.4 min read·May 9, 2021----
Cure Rare DiseaseOvercoming Obstacles: Building a Successful Career in an Inaccessible World | Cure Rare DiseaseWritten By Justin Cohen; Read the original post here.4 min read·May 9, 2021----
Cure Rare DiseaseFinding Career Motivation in a Rare Disease Diagnosis | Cure Rare DiseaseWritten by Katie Kuhl; Read the original post here.3 min read·May 9, 2021----
Cure Rare Disease30 With DMD: Finding My Life’s PurposeWritten by Vivek Gohil; Read the original blog post here.5 min read·Jan 18, 2021----
Cure Rare DiseaseOur Proudest Press: 2020Read the original blog post here.3 min read·Jan 14, 2021----
Cure Rare DiseaseNavigating Entrepreneurship and Motherhood While Battling SMAMeet Megan DeJarnett: a children’s book author, the CEO and founder of No Such Thing Co., and a mother of two. On January 7th, she…3 min read·Jan 12, 2021----